CULTURAL ISSUES > Diversity & End-of-Life Care

Cultural Diversity and End-of-Life Care Resources

Altilio, T., Otis-Green, S. (Eds.) (2011). Oxford Textbook of Palliative Social Work. Oxford University Press: New York, NY.

Austerlic, 5. (2009). Cultural Humility and Compassionate Presence at the End of Life. Available at competent- care/chronic-to-critical-austerlic.html.

Bacock, E.N. (1997). When Life Becomes Precious: A Guide for Loved Ones and Friends of Cancer Patients. Bantam Books: New York, NY.

Back, A., Arnold, R., Tulsky, J. (2009). Mastering Communication with Seriously Ill Patients:  Balancing Honesty with Empathy and Hope. Cambridge University Press: New York, NY.

Byock, I. (2012). The Best Care Possible: A Physician's Quest to Transform Care Through the End of Life. Avery: New York, N.Y.

California Health Advocates (2011). Are You Practicing Cultural Humility? Available at


Christ, G., Messner, C., Behar, L. (Eds.) (2015). Handbook of Oncology Social Work. Oxford University Press: New York, NY.

Crawley, L., Marshall, P., La, B., Koenig, B. (2002). Strategies for Culturally Effective End-of-Life Care. Annals of Internal Medicine. 136(9):673-679.

Crawley, L. (2010). Having a Say: Agency and end-of-life decision-making in The Chaneysville Incident. Journal of General Internal Medicine 25(9):995-6.

Crawley, L., Kagawa-Singer, M. (2007). Racial, Cultural and Ethnic Factors Affecting the Quality of End-of-Life Care in California: Findings and Recommendations. California HealthCare Foundation Report. Available at—/media/MEDIA LIBRARY Files/PDF/C/PDF CulturalFactorsEOL.pdf.

Daitz, B. (2011). With Poem, Broaching the Topic of Death. The New York Times. January 24, 2011.

Denny, A. E. (2013). My Voice, My Choice: A Practical Guide to Writing a Meaningful Healthcare Directive. Directives by Design: Minneapolis, MN.

Dolan, 5.R., Vizzard, A.R. (2007). From the Start Consider the Finish: A Guide to Excellent End-of-Life Care. Outskirts Press: Denver, CO.

Dolan, 5.R., Vizzard, A.R. (2009). The End-of-Life Advisor: Personal, Legal and Medical  Considerations for a Peaceful, Dignified Death. Kaplan Publishing: New York, NY.

Dresser, N. (2013). Come As You Aren't: Celebrating Events in the New Cultural Diversity. (2nd Edition). M. Evans and Company: Lanham, MD.

Ellingson, L. (2005). Communicating in The Clink: Negotiating Frontstage and Backstage Teamwork. Hampton Press: Cresskill, NJ.

Fadiman, A. (1997). The Spirit Catches You and You Fall Down: A Hmong Child, Her American Doctors and the Collision of Two Cultures.  Farrar, Straus and Giroux: New York, NY.

Feldman, D.B., Lusher, S.A. (2007). The End-of-Life Handbook: A Compassionate Guide to  Connecting With and Caring For a Dying Loved One. New Harbinger Publications: Oakland, CA.

Foley, K.M., Back, A, Bruera, E., Coyle, N., Loscalzo, M.J., Shuster, J.L., Teschendorf, B. Von Roenn, J. H. (Eds.) (2005). When the Focus is on Care: Palliative Care and Cancer. American Cancer Society: Atlanta, GA.

Galanti, G. (2012). Cultural Sensitivity: A Pocket Guide For Healthcare Professionals, 2nd Edition. : Joint Commission Resources Missions: Oakbrook Terrace, IL.

Gawande, A. (2014). Being Mortal: Medicine and What Matters in the End. Metropolitan Books: New York, NY.

Hammes, B. (Ed.). (2012). Having Your Own Say: Getting the Right Care When It Matters Most. CHT Press: Washington, DC.

Institute of Medicine Committee on Approaching Death: Addressing Key End-of-Life Issues (2014). Dying in America: Improving Quality and Honoring Individual Preferences Near the End of Life. The National Academies Press: Washington, DC.

Jenkins, M. (2002). You Only Die Once: Preparing for the End of Life with Grace and Gusto.  Integrity Publishing: Nashville, TN.

Kagawa-Singer, M., Blackhall, L. (2001): Negotiating Cross-Cultural Issues at the End of Life. Journal of the American Medical Association. 286(23):2993-3001.

Kaufert, J., Putsch, R. (1997). Communication through Interpreters in Health Care: Ethical dilemmas arising from differences in class, culture, language, and power. Journal of Clinical Ethics. 8(1): 71-87.

Lambda Legal, Human Rights Campaign, Hogan Lovells, New York City Bar (2016). Creating Equal  Access to Quality Health Care for Transgender Patients: Transgender-Affirming Hospital Policies.  Available at

Like, R. (2004). Cultural Competence in Cancer Care: A Heathcare Professional's Passport. Department of Health and Human Services: Rockville, MD.

Lipson, J., Dibble, 5., Minarik, P. (Eds.). (1996). Culture & Nursing Care: A Pocket Guide. UCSF Nursing Press: San Francisco, CA.

Margolies, L., Joo, R., McDavid, J. (National LGBT Cancer Network). Best Practices in Creating and  Delivering LGBTQ Cultural Competency Trainings for Health and Social Service Agencies. Available at

Matlins, S. (2015). How to Be a Perfect Stranger: The Essential Religious Etiquette Handbook.  (6th Edition). SkyLight Paths Publishing: Woodstock, VT.

McQuellon, R.P., Cowan, M.A. (2010). The Art of Conversation Through Serious Illness: Lessons for Caregivers. Oxford University Press: New York, NY.

Morris, V. (2001). Talking About Death Won't Kill You. Workman Publishing: New York, NY.

Patterson, K., Grenny, J., McMillan, R., Switzler, A. (2002). Crucial Conversations: Tools for Talking When Stakes Are High. McGraw-Hill: New York, NY.

Remen, R. (1996). In Service of Life. Noetic Sciences Reviews, Spring 1996.

Saha, S., Beach, M.C., Cooper, L. (2008). Patient Centeredness, Cultural Competence and  Healthcare Quality. Journal of the National Medical Association, Volume 100, No. 11.

Sanders, J., Robinson, M., Block, S. (2016). Factors Impacting Advance Care Planning among African Americans: Results of a Systematic Integrated Review. Journal of Palliative Medicine. Volume 19, No. 2.

Schaffer, M., Norlander, L. (2009). Being Present: A Nurse's Resource for End-of-Life Communication. Sigma Theta Tau International: Indianapolis, IN.

Skloot, R. (2010). The Immortal Life of Henrietta Lacks. Broadway Paperbacks: New York, NY.


Spitzer, W. (Ed.), (2005). Cultural Competence in Health Care Social Work Practice. The Dietz Press: Petersburg, VA.

Storey, P. Knight, C. F. (Eds.). (2012). Hospice/Palliative Care Training for Physicians: A Self-Study Program (4th Edition): UNIPAC Five: Caring for the Terminally III-Communication and the Physician's Role on the Interdisciplinary Team. Mary Ann Liebert, Inc. Publishers: Larchmont, NY.

Tervalon, M., Murray-Garcia, J. (1998). Cultural Humility vs. Cultural Competence: A Critical  Distinction in Defining Physician Training Outcomes in Multicultural Education. Journal of Health Care for the Poor and Underserved.
9(2):1 17-125.

Verghese, A. (2009). Cutting for Stone. Vintage Books: New York, NY.


Volandes, A. E. (2015). The Conversation: A Revolutionary Plan For End-of-Life Care. Bloomsbury: New York, NY.

Webb, R. (2013). Advancing Health Equality Through the National Culturally and Linguistically Appropriate Services (CLAS) Standards. Practice Perspectives from The National Association of Social Workers.

Webb, R. (2014). Multiculturalism: Implications for Culturally Competent Social Work Practice.  Practice Perspectives from The National Association of Social Workers.

Willis, C.B. (2013). Lasting Words: A Guide to Finding Meaning Toward the Close of Life. Green Writers Press: Brattleboro, VT.

Wittenberg, E., Ferrell, B., Goldsmith, J., Smith, T., Glajchen, M. Handzo, G., Ragan, S. L. (2015). Textbook of Palliative Care Communication. Oxford University Press: New York, NY     11111

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